Launches #RareAlly initiative to recognize those in the rare disease community who inspire and motivate us each day
Furthers efforts by patient advocacy groups to educate and support the rare disease community
#RareAlly is intended to recognize those who inspire us to be allies in this journey, including patients, caregivers, advocacy leaders, researchers, physicians, coworkers or the many other partners that fuel the Company’s work. For Rare Disease Day and every day, Taysha celebrates those allies in the rare disease community who inspire us, who challenge us to give and be our best, and who we lean on for support. A collection of inspiring individuals and their allies is reflected at www.tayshagtx.com/rare-ally.
“#RareAlly is Taysha’s way of championing the individuals and groups who inspire us each and every day,” said
As part of Rare Disease Day activities, Taysha is raising funds through its #RareAlly photo submission campaign to support the rare disease community, and will host an all-employee event featuring a guest speaker from the UT Southwestern Gene Therapy Program and a screening of the “One Shot to Live” documentary series created by the
Approximately 300 million people around the world live with a rare disease and approximately 70% of rare genetic diseases start in childhood. In recognition of the significant amount of people living with rare conditions, the
SVP, Corporate Communications and Investor Relations